• Lata Moss

Falling off the ‘magical cliff’: Call for review of NDIS age ‘discrimination’: SMH 3rd May 2021

Mr Moss has facioscapulohumeral dystrophy (FSHD), a form of the muscle-wasting muscular dystrophy. But he still considers himself lucky because he can afford his own care, and he is still up for a fight. He founded the FSHD Foundation in 2007 and remains its patron, committing $8.3 million to fund 40 ongoing medical research grants in nine countries. And now he is taking on the federal government over a feature of the National Disability Insurance Scheme (NDIS) that means people with a disability who do not register with the scheme before the age of 65 are barred from funding under the scheme. Instead, they are at the mercy of the aged-care system.

“If a person loses their legs in a motorbike accident and they are 64, they’re entitled to NDIS benefits. If they do when they’re 65, they’re not,” Mr Moss told The Age and the Herald. “There is this magical cliff here, and I look at it and I say ‘Well hang on, this is age discrimination and it should be reviewed’.” He has written to the federal government asking them to remove the age cut-off and make all people with a disability eligible for the NDIS, introduced by the Gillard government in 2013 with bipartisan support. The cut-off only applies to new participants – someone already receiving support from the NDIS can continue to do so after turning 65.

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